Welcome to alpha-1.org.uk
Join the Alpha1-UK mailing list. If you do you'll be in contact with some 100 other people living with Alpha1 in the UK. By writing a post to the list all members receive it, and can answer, and discuss any issues. I think you'll find us a friendly bunch of folk, and the discussions are not necessarily 'on topic'
The smart enamel badge, shown above can be obtained from John Doyle at a cost of £1.00 each + £1.50 p&p (for up to 30 badges)
The size of the badge is 16mm X 28mm (and has a butterfly fastening). John can be contacted at jedoyle@blueyonder.co.uk
Join by clicking here - JOIN NOW!
Quoted text :: from:- Connie Storey
You have sent out your message on the internet and it has floated into our line of sight. We read it and we recognize that we know you. You have said the magic words that bind us all together... Alpha 1 Antitrypsin Deficiency.
Here in this part of the land of the internet we know what that means and we are ready to pull you close and call you sister, brother, friend.
Here we know the secret passwords; breathless, sleepless, frightened... disability. But, we know other things too. We know that life is often more beautiful and rewarding when we are made to consider that we won't live forever.
We know that there are friends who are always watching for your message to appear and when you call out, cry out, casting your message wide over the internet those mysterious friends will reach out and speak. It will be like they are in the room with you and they know exactly what is happening with you. They understand.
Here, in our private home just off the busy streets of the internet you will find encouragement and knowledge. You will find that Alpha 1 is not an immediate death sentence nor the worst thing that ever happened to you.
Welcome... Since this is a genetic condition we all pretty much feel that we are related... cousins, siblings, long lost relations. Ask us anything at any time.
We are here for you.
Written by Connie Storey
Our Alpha Cousin in Washington State
Here in this part of the land of the internet we know what that means and we are ready to pull you close and call you sister, brother, friend.
Here we know the secret passwords; breathless, sleepless, frightened... disability. But, we know other things too. We know that life is often more beautiful and rewarding when we are made to consider that we won't live forever.
We know that there are friends who are always watching for your message to appear and when you call out, cry out, casting your message wide over the internet those mysterious friends will reach out and speak. It will be like they are in the room with you and they know exactly what is happening with you. They understand.
Here, in our private home just off the busy streets of the internet you will find encouragement and knowledge. You will find that Alpha 1 is not an immediate death sentence nor the worst thing that ever happened to you.
Welcome... Since this is a genetic condition we all pretty much feel that we are related... cousins, siblings, long lost relations. Ask us anything at any time.
We are here for you.
Written by Connie Storey
Our Alpha Cousin in Washington State