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Welcome!
You have sent out your message on the internet and it has floated into our line of sight. We read it and we recognize that we know you. You have said the magic words that bind us all together....Alpha 1 Antitrypsin Deficiency.
Here in this part of the land of the internet we know what that means and we are ready to pull you close and call you sister, brother, friend.
Here we know the secret passwords; breathless, sleepless, frightened....disability. But, we know other things too. We know that life is often more beautiful and rewarding when we are made to consider that we won't live forever.
We know that there are friends who are always watching for your message to appear and when you call out, cry out, casting your message wide over the internet those mysterious friends will reach out and speak. It will be like they are in the room with you and they know exactly what is happening with you. They understand.
Here, in our private home just off the busy streets of the internet you will find encouragement and knowledge.You will find that Alpha 1 is not an immediate death sentence nor the worst thing that ever happened to you.
Welcome .... Since this is a genetic condition we all pretty much feel that we are related...cousins, siblings, long lost relations. Ask us anything at any time.
We are here for you.
Written by Connie Storey, our Alpha Cousin in Washington State
Last updated :-
7th November 2007
Site kindly sponsored and hosted by The Internet Factory
The smart enamel badge, shown above can be obtained from John Doyle at a cost
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(and has a butterfly fastening).John can be contacted at :-
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DISCLAIMER:The information provided in this site is for educational purposes only,
and it is not intended nor implied to be a substitute for professional medical advice.
Always consult your own physician or healthcare provider with any questions you may
have regarding a medical condition.